Seizures. Neurosurgery. Neuro-Vascular Malformations. Brain Surgery. My vocabulary vastly expanded on January 30, 2021 when my then sweet-as-pie 7 year old daughter suffered a 45 minute convulsive seizure in the middle of the night, while sleeping. I will forever remember that phone call as she was spending the night with my mom -- our Lulu -- and speaking with the EMTs on the phone as they transported her to Children's Hospital of Alabama. It would turn out that she'd had several seizures in weeks prior, also in the middle of the night, that I presumed to be nightmares and nothing more.
The road to her diagnosis, treatments, neurosurgery, medical care, life-care, would be unlike any journey I ever fathomed I'd travel, much less learn to live each day finding the rest-stops along the way.
Now 3 years later, I struggle even today, to talk about and share what has transpired since Liza's diagnosis. Though I make a purposeful attempt to be transparent, honestly raw, in each update and writing, hopeful that her story, our journey, & her life enriches that of perfect strangers, family far-and-wide, our community, neighbors, moms and dads / caregivers around the world . . . it is HARD. Yet, through it all, the God Winks have encouraged my faith, the prayers around the world lifted my spirits amidst discouragement and despair, the love of perfect strangers serving as reminders that angels are among us, and God's sovereignty divine.
I've learned, through grief for the life I wanted for my children, the tears begging God to save Liza's life, prayers on my hands and knees for peace, comfort and direction, that . . . Life can be bitter - sour at times. Yet the sweetness of God's love, grace, patience, kindness, and forgiveness makes the presence of sour, bitter days, nights, and circumstances - the "Mix" of pleasure, pain, joy & sorrow we are faced with in adversity - sweet and satisfying.
The "Lemonade Lifestyle" is not a chosen one, but rather a day-to-day choice to wake up, choose happy, and embrace the unknowns ahead. It's a lifestyle I've had to wake up to and find joy and comfort in, one sip at a time, learning always and modifying my expectations for "today" in order to live for tomorrow. It's been a journey of tragedy to triumph - from bitter to sweet.
And so I share this with all those longing for guidance and direction in the face of adverse circumstances that are beyond your understanding and ability to comprehend . . .
In the face of adversity and hardship, loss and grief, we discover the desires of our heart, manifested in the goodness, the sweetness, the kindness, the love - that is found only through faith in our God above - who delivers us from evil, from suffering, from despair and heartache - that His grace, His mercy, His compassion, His love is our greatest comfort, healing and cleansing our hearts, minds, and souls, preparing us for the joy to come by His forgiveness. Our faith does not make the sickness, the pain, the suffering, the heartache, grief and loss, go away, nor does it make it easier. Our faith makes living the "Lemonade Lifestyle" possible, by His promises to go before us, be with us, and never leave us or forsake us, instructing that we "Do not be afraid; do not be discouraged." (Deuteronomy 31:8), as "She who kneels before God can stand before anyone." (Romans 8:37).
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